Check out the book Sonja wrote about Brandon’s life as a performer!
All funds go to the cure retinal blindness foundation:
Brandon is 23 years old with LCA-CRB1, a form of Leber’s Congenital Amaurosis, and his brother, Joshua, is 19.
Josh is a potential carrier of LCA-CRB1; however, he has no visual difficulties related to the gene mutation. Josh is an artist studying graphic art and illustration with hopes of becoming a graphic designer for a gaming company in the future. He also enjoys science and math and has a brilliant mind. Brandon is an inspirational performer. He loves acting, singing, dancing and has performed in over 17 musical theater productions and two opera productions. He is also a songwriter and has delved into putting together clips of his songs. However, his greatest passion is opera. His beautiful bass/baritone voice enchants us as we listen to him perform with a richness that comes from his heart. Brandon has not let his lack of sight keep him from following his dreams.
We have been following the clinical trials for the RPE65 gene and have been excited about the success in restoring sight that has come from those trials. As we thought about it; we said, “Why not CRB1? Let’s start a foundation for research into the CRB1 gene!” I asked another mom, Jennifer Pletcher, who was doing this for her daughter’s gene mutation and she put me in touch with Kristin Schneider Smedley. Kristin has two boys with LCA-CRB1 blindness. I asked Kristin if she would partner with me and she said, “Yes!” The more we got into our dream, the more families we have connected with and Kristin has been able to really get things moving because she lives in Pennsylvania where the doctors and the DeAngelo Foundation are. Thus the CRBF (Cure Retinal Blindness Foundation) has been born. Connecting with Kristin and other families affected by LCA-CRB1 has been a Godsend for us! We have been waiting and desiring this opportunity for 22 years and a cure will now become a reality with your help in funding research on the CRB1 gene! You can help by directly donating or hosting fundraisers in your area and donating the proceeds to
When the website asks which family you represent, choose the Biggs Family. Together, the families in CRBF have raised over $400,000 that is put to work to support the research that will find a cure for our children’s blindness.
What will this do for our family? Brandon will be able to have his sight restored! He will be able to see the dance moves, read print music, read the cold read scripts, and see the beautiful face of his gorgeous girlfriend! He will also be able to see our faces…the face of his mother, father, and brother for the first time. We are proud of Brandon’s accomplishments as a blind performer and his top academic grades in college. He has done so much with his life already. Our dream for Brandon is that he will be able to see with his eyes one day soon. Both of our boys make us proud parents and Brandon always reminds us to “Dream the impossible dream…and then live it!”
–Atom and Sonja Biggs
Shop with Amazon Smile and have a portion of every thing you pay go to the Cure Retinal Blindness Foundation!
log into amazon smile with your normal amazon account. If this is your first time, you will be asked to choose a foundation to support. Enter into the search box
“Curing Retinal Blindness Foundation Inc”
and arrow down to the results. There is an unlabeled button under each entry and that button is what you click to set that foundation as the one to receive your donation.